Know Your Rights

You have a right to be heard.

Under the Americans with Disabilities Act, public agencies, healthcare providers, and businesses are required to communicate with you effectively — even if you can't speak the way the world expects. This page explains the law, how to ask for what you need, and where to file when you're refused.

The category, in code language.

This is the version we hand to legislators, town counsel, and ADA Coordinators. It is intentionally modeled on 42 USC § 12102, the ADA's existing definition of disability — so voice impairment slots into the civil-rights framework already in force.

Voice Impairment · Proposed Statutory Definition

"Voice impairment" refers to a medically recognized condition that substantially limits a person's ability to speak, be understood, or communicate effectively, including conditions such as stroke, aphasia, ALS, cerebral palsy, apraxia, and related disorders.

This is the definition AgeWell Alliance is pushing into state and municipal code. It is the legal/regulatory companion to the broader, experience-based definition that defines who self-identifies into the movement. Read the full charter →

It's already illegal to refuse to communicate with you.

The Americans with Disabilities Act has been federal law since 1990. It says public agencies (Title II) and businesses open to the public (Title III) must provide effective communication to people with communication-related disabilities — and the kind of help they provide must give "primary consideration" to what you ask for.

In plain language: if you can't speak, or speak the way the system expects, the building has to meet you where you are. That isn't a favor. It's the law.

The reason AgeWell Alliance exists is that "voice impairment" still isn't a named category in disability rights. The protection is technically there. The recognition isn't. We're here to fix both.

ADA Title II — state & local government, public schools, courts, town halls, public hospitals, public transit. Must provide auxiliary aids and services. Must give primary consideration to your requested method of communication.
ADA Title III — privately-owned places open to the public: restaurants, retail, hotels, doctors' offices, banks, gyms, theaters. Must provide auxiliary aids and services unless it would be a fundamental alteration or undue burden — a high bar.
Section 504 & Section 1557 — extend the same effective-communication requirement to anyone receiving federal funds, and specifically to healthcare. Hospitals can't refuse a communication accommodation because it's inconvenient.
State law — Connecticut and most states layer their own anti-discrimination protections on top of federal law. In CT, the State ADA Coordinator's office is a real resource you can call.

Four rights you can use today.

These aren't aspirations. They're current law. If a public agency or business refuses any of them, the refusal itself is the violation — not your disability.

Right 01

Effective communication.

You have the right to receive information from, and communicate back to, any public agency or covered business in a way you can actually understand and use. Spoken English at a counter is not the only acceptable method.

Right 02

Auxiliary aids and services.

Speech-generating devices, AAC apps, written communication, qualified interpreters where appropriate, real-time captioning, picture boards, and other tools must be provided when needed — at no cost to you.

Right 03

Primary consideration.

Public entities (Title II) must give "primary consideration" to your stated preference. If you say writing works and lip-reading doesn't, the burden is on them to justify any other choice — not on you.

Right 04

To bring your own device.

You are allowed to use your own AAC device, phone, tablet, or assistive technology in any public space, hospital, school, or covered business. They cannot make you stop using it because staff are unfamiliar with it.

Requesting an auxiliary aid.

You don't have to be a lawyer to ask. Most successful accommodation requests are short, clear, and in writing. Here's the pattern that works.

01

Ask in writing.

Email or letter. A written record protects you. If you can only ask in person, follow up the same day with a one-line email confirming what you asked for.

02

Name the law.

One sentence: "I am requesting an auxiliary aid under the ADA." For public agencies, add "Title II." For private businesses, "Title III." For healthcare, also "Section 1557."

03

State what you need.

Be specific: "I will be using an AAC device," "I need to communicate in writing," "I need a quiet room and extra time at intake." You don't have to disclose your diagnosis to make the request.

04

Set a date.

If the appointment, hearing, or visit has a date, include it. Ask for written confirmation that the accommodation will be in place. Keep every reply.

Copy this. Send it.

Fill in the blanks. Email it. Save the reply. This is the shortest accommodation-request letter that works.

Sample — ADA accommodation request Adapt to your situation

To: name / department
From: your name
Date: today's date
Re: Request for auxiliary aid under the ADA

I am writing to request a reasonable accommodation under the Americans with Disabilities Act for an upcoming interaction with your office.

I have a communication-related disability. On date / time I will be visiting / calling / attending for the purpose of brief reason.

To communicate effectively, I will need: specific aid — e.g., to use my own AAC device; written communication; extra time at intake; a quiet room. Please confirm in writing that this accommodation will be in place before the date above.

If for any reason you believe this accommodation cannot be provided, please respond in writing with the specific reason and propose an alternative that achieves effective communication, as required under 28 C.F.R. § 35.160 (Title II) / § 36.303 (Title III).

Thank you. You can reach me at email / phone / preferred contact.

Sincerely,
your name

If you don't get a written response within a reasonable time (a week or two for routine requests, sooner for medical or urgent matters), that silence is itself useful evidence if you later file a complaint.

Where to file a complaint.

If a public agency or covered business refuses to provide effective communication, you have multiple, free paths to enforcement. Lawsuits exist not to scare businesses but because, for thirty-five years, this has been how the ADA actually gets enforced.

Federal — broadest reach

U.S. Department of Justice

The DOJ Civil Rights Division accepts ADA Title II and Title III complaints from anywhere in the country. Free to file. No lawyer required.

civilrights.justice.gov
Healthcare — Section 1557

HHS Office for Civil Rights

For hospitals, clinics, and any healthcare entity that receives federal funding. Files Section 1557 + Section 504 complaints. Strong record on communication-access cases.

hhs.gov/ocr/complaints
Schools — students & families

U.S. Dept. of Education OCR

For K-12 and higher-education refusals — including denying a student the use of an AAC device or refusing communication accommodations on a 504 plan or IEP.

ed.gov/ocr/complaintintro
Connecticut residents

CT Office of the ADA Coordinator

State-level resource. Connecticut also has the CHRO (Commission on Human Rights and Opportunities) for state-level disability discrimination complaints — often faster than federal channels.

portal.ct.gov/CHRO
Free legal help

Disability Rights organizations

Every state has a federally-funded Protection & Advocacy (P&A) agency that provides free legal help on disability rights issues. They will not charge you.

ndrn.org/member-agencies
Walk us through it

AgeWell Alliance

If you don't know where to start, write us. We're not lawyers and we don't represent you, but we can listen, point you at the right channel for your situation, and pass you to coalition partners who do.

Contact the alliance →

What people get wrong.

Myth

"ADA accommodations are a favor, and businesses can refuse if it's inconvenient."

Fact

Effective communication is a legal requirement. "Inconvenience" is not the same as "undue burden," and Title III's bar for refusing is high and rarely met.

Myth

"You have to disclose your diagnosis to ask for an accommodation."

Fact

You don't. You only have to identify what you need. The covered entity is not entitled to a medical interrogation.

Myth

"If you bring your own device, you've waived your right to ask for help."

Fact

Bringing your own AAC, app, or assistive tech does not relieve the entity of its duty to provide auxiliary aids and services if you still need them.

Myth

"ADA lawsuits are predatory and out of control."

Fact

Private enforcement is how the ADA was designed to be enforced. The conversation about bad-faith filings is real, but the much larger problem is the millions of people whose rights are quietly denied without anyone ever filing anything.

Why we want voice impairment named.

The ADA already protects you. So why are we pushing for a new named category?

Because for thirty-five years, "communication" under the ADA has been read mostly as Deaf/HOH access — interpreters, captioning, written notes. That was the right first move. But the people who can't speak, or speak the way the world expects — stroke survivors, AAC users, people with aphasia, autistic individuals, ALS patients, people with apraxia, dysarthria, selective mutism, late-stage dementia families — have never had their own line in the law, their own seat at the table, or their own banner.

"Voice impairment" is the working name for that category. Naming it doesn't add a new right. It makes the right we already have impossible to ignore.

If you've been refused, tell us.

We can't be your lawyer. We can listen, write you back, and walk you to the right door — DOJ, OCR, your state's P&A, or a coalition partner who does this for a living. Every refusal we hear about helps us prove the case for naming voice impairment as a civil rights category.

Tell us what happened Read about the tribe
Not legal advice. AgeWell Alliance is a Connecticut civil rights alliance, not a law firm. The information on this page is general education about the Americans with Disabilities Act and related federal and Connecticut law. It is not a substitute for advice from a licensed attorney or your state's federally-funded Protection & Advocacy agency. If a refusal involves urgent medical care, danger to life, or a child's IEP/504 plan, contact a P&A agency or attorney directly.